A Little MS TMI~ An Embarrassing Multiple Sclerosis Symptom

By Yvonne deSousa

There are not enough words in the English language to describe something that is weird; I know, I’ve checked.

Recently I was told about this neat trick in my Microsoft program where I can type in a word and then right click on it for a list of synonyms.

So, of course I typed “weird” and all that came up was: strange, odd, bizarre, peculiar, uncanny, eerie and creepy.   These adjectives are no match for multiple sclerosis.

Since MS is a worldwide disease, maybe other countries have better words.   But since English is the only language I know, I’m not sure what those words are.  I used to know some Portuguese but all my MS brain can remember is some swear words that may work but not exactly….

So how then do I explain to you a recent and very personal but weird, odd, uncanny, peculiar, etc symptom?   Since I have started writing about my MS, I have given up on being easily embarrassed.  This symptom however, may fall under the realm of TMI (too much information.)  But it is so, well weird, I have to share it with you.  Forgive me for the graphic nature of this description.

Lately, whenever I have to use the bathroom (which is ALWAYS since one of my most minor but annoying symptoms is increased frequency and urgency of urination-yuck) when I sit on the toilet seat, my right butt cheek feels as though I have sat on something wet.

There, I have said it.  Gross huh?

And yes, I am sure that is not the actual case. When this happens, I am not sitting in something wet.  Trust me, I have checked that too.

As I am a slight germaphobe (not quite at the Howie Mandel or Monk stage but I can see it fast approaching), I am always pretty careful about what’s going on where I am sitting.

In the cases where I have to use a public restroom (which is becoming harder and harder to avoid,) I am pretty anal (forgive the bad pun) about what I will be sitting on.  Plus, this unique situation (hey I just came up with an adjective that Microsoft didn’t include and yet I still did lousy on all those cognitive tests!), happens everywhere- at home, at my mom’s, at friend’s houses, etc.

What is this and why did it just start and why does it only occur on one side of my butt?

How can this latest symptom (indication, sign, warning sign, indicator,) make sense?

Oh right, it is MS.  About the only thing in multiple sclerosis that makes sense is that it doesn’t make any sense at all!

What is your most bizarre MS symptom?

About the author: Yvonne deSousa was diagnosed with relapsing/remitting multiple sclerosis in 2009. Yvonne created her blog designed to help those with chronic illness laugh amid tears. Yvonne also enjoys writing about Cape Cod history and has been published on Cape Women Online and in the Provincetown Banner, and Cape Cod Times. Visit Yvonne online at YvonnedeSousa.com or Yvonne deSousa on Facebook


About our Co-Founder: With a bachelors in Social Work, Linda is 53 years old, happily married with eight children and 17 grandchildren. Diagnosed with MS in 1995 and now having accepted and truly embraced her new reality, Linda has created MSrelief.com. She is dedicated to proving that joy can be chosen while living with Multiple Sclerosis. Linda specializes in helping others, especially those with MS attain the lifestyle, independence and happiness amid living with MS.


  1. Yvonne~
    You crack me up! I thank you for sharing your humor with us here on MSrelief.com! I have had all kinds of symptoms and like you say they are all crazy and many embarrassing but the MOST Bizarre? It is not unusual but it took me a few days to realize what was happening and thankfully it has gone away (at least for now) ~ the feeling that I had a hair dangling on my nose or lips. For weeks I looked like I was picking my nose !

  2. That is so weird that you mentioned that one Linda! Years before my diagnosis, a friend caught me trying to pull at something in front of my face. It felt long there was a long hair over my eyes and nose and then down my cheek. I kept trying to grab this imaginary hair and she thought I lost my mind. I tried to explain but she just thought I was crazy. Little did we know…..

  3. So far, I have never experienced that MS symptom…
    That is really a weird experience indeed.

    • Danyelle,
      So far … Every day is an adventure with MS! It’s all about accepting and not expecting! Well, expecting only happiness and healing, and accepting symptoms, know what I mean?

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