Ampyra (dalfampridine), known as the “walking drug”, is a treatment to improve walking speed in patients with multiple sclerosis. In clinical trials it increased the walking speed of over a third of the patients.
As you see by my video, I walk VERY slowly. I use my walker most times, and always when I am outside the home. When I walk around the house with my cane, it takes almost one full minute to walk 30 feet.
When I practice by lifting up my cane, I can walk about 10 baby-steps before I need to catch myself quickly setting the cane down for support.
I make myself get up and practice walking periodically throughout the day. I’m having so much fun working online, it takes serious self-discipline to get up and practice.
I realize that it is too early to tell, but I’m excited about the possibility of walking again!
It’s really wild that I’m the strongest in the evening, walking is easier then.
Now I have to do the work, the physical therapy!
I’m grateful that Holly Fulford-Jeffery created instructional videos and encourages us to do these simple routines at least 2 times a day right at our desks. The stretches she demonstrates really help the stiffness, but I still have to get up and walk!
The beauty of Ampyra is it can be taken with any of the other ms drugs. I’ll be switching from Copaxone to Gilenya next week. I look forward to medication with no injection! I’ll do another movie next month and let you know how it’s going.
Have you used Ampyra, or do you know anyone who has? Leave a comment below and join me at msrelief on facebook too!