Attention United States MSers

If we have MS and live in the United States we’re needed!  Only one hour of our time and we’ll receive a $10 gift card for completing the survey!

Erin Snook is a researcher at UMass Amherst (and has MS) is developing a new MS symptom questionnaire (funded by the Consortium of MS Centers) and is trying to get a nationally representative sample of participants containing a minimum of 4 people with MS from every state.
Erin is looking for 100 more people for the United States to complete this study.   The next phase of the study will include Canada, and after that the UK and Australia.  This information is very interesting and an important step forward!

Improving the Measurement of MS Symptoms

Researchers in the Physical Activity and Behavior Lab at the University of Massachusetts Amherst are currently recruiting individuals with MS for a study of MS symptoms. This is a voluntary study that is testing a new comprehensive symptom survey to determine how well it is able to measure the severity, frequency, and distressfulness of MS symptoms.

The survey can be completed online (approximately 30 minutes) and participants will receive a $10 gift card for completing the study.

Click on this link to complete the survey.

Participants in the study must have a definite diagnosis of MS, be between 20-70 years old and be a resident of the United States. Anyone interested in more information should contact Dr. Erin Snook by email esnook@kin.umass.edu or telephone (217) 417-0176.

I’m very happy to give an hour of my time for a great cause!  I hope my Alaskan friends will too!  I know Dr. Snook will be surveying Canada next!

Linda

About our Co-Founder: With a bachelors in Social Work, Linda is 53 years old, happily married with eight children and 17 grandchildren. Diagnosed with MS in 1995 and now having accepted and truly embraced her new reality, Linda has created MSrelief.com. She is dedicated to proving that joy can be chosen while living with Multiple Sclerosis. Linda specializes in helping others, especially those with MS attain the lifestyle, independence and happiness amid living with MS.

5 Comments:

  1. Thanks for the info. I am sharing it.

  2. I am VERY interested in participating in your study. I have had M.S. since August, 1983 and have been on just about every injection that we could try. Initially I was put on Avonex, then changed to Rebif, Copaxone, Extavia, now Betaseron…… I was even tested for the P.M.L. gene at Ohio State University, for possible participation with the Tsabri trial there.

    Any information/advice I can receive is very much appreciated!

    Thank you,
    Cindy Fowler

    • Cynthia,
      Great! Were you able to get into the study! I agree, it’s great to share our experiences! I’ll make sure Erin has your information!
      ~Linda

  3. It is a really comprehensive survey. But, 30 min. is a bit of exaggeration of how long it takes to complete. Reserve at least an hour and a half.

    • Lainey,
      I’ll pass that information on to Erin and I’ll change this post to an hour. It took me almost an hour and I thought I was just slow. I received my $10 Amazon Card today. Even for as long as it took, we have the good feelings for serving the MS community and $10!
      ~Linda

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