CCSVI Current Status

CCSVI ~ Chronic Cerebrospinal Venous Insufficiency is very hot topic. My neurologist, Dr. Jeffrey Sponsler is involved in the CCSVI study with the National MS Society. His office called a few minutes ago telling me that he’s involved. I have an appointment tomorrow at 12:30 for the MRI needed to see if I qualify for the CCSVI treatment.

I hope I don’t qualify, but I’ll be able to check it off my list of possible cures!

I got right on YouTube and found a series of five videos made in February 2011 about this subject. Here you’ll see and hear from Dr. Mark Haake PhD (left), Dr. Teri Jaklin ND (center) and Dr. Joseph Hewett Md (right) share their knowledge of CCSVI.

Dr. Hewett spoke of three sets of imaging. Doppler Ultra Sound, MRI and Angiography. Angiography is said to be the Gold Standard; it gives the best answers the most often. These other imaging modalities are very important, but Dr. Hewett thinks the MRI is the most important.

The Doctors suggested we learn enough information to take control of the decision to use stents.

Wikipedia enlightened me about restenosis; “Restenosis literally means the reoccurrence of stenosis, a narrowing of a blood vessel, leading to restricted blood flow. Restenosis usually pertains to an artery or other large blood vessel that has become narrowed, received treatment to clear the blockage and subsequently become renarrowed. This is usually restenosis of an artery, or other blood vessel, or possibly a vessel within an organ. This term is common in vascular surgery, cardiac surgery, and angioplasty, all branches of medicine that frequently treat narrowing of blood vessels.”

All three doctors agree that research is crucial to understand the causality and causation of treatments. There is now research being collected in Europe, Canada, United States.

Like I said, I hope I don’t qualify for CCSVI, but I look forward to taking part in this study.

ps. The results are in~ I don’t have need for the CCSVI treatment so I can check it off the list.

Linda

About our Co-Founder: With a bachelors in Social Work, Linda is 53 years old, happily married with eight children and 17 grandchildren. Diagnosed with MS in 1995 and now having accepted and truly embraced her new reality, Linda has created MSrelief.com. She is dedicated to proving that joy can be chosen while living with Multiple Sclerosis. Linda specializes in helping others, especially those with MS attain the lifestyle, independence and happiness amid living with MS.

7 Comments:

  1. The best place to find unbiased information, more doctor interviews, and links to all published peer reviewed articles on the subject about CCSVI and its treatment are at http://www.ccsvi.org. There is also a thriving community on Facebook at
    “CCSVI and Multiple Sclerosis”. The page is administrated by Joan Beal who brought Dr. Zamboni’s work to doctors at Stanford University. Her husband was the first American treated, and he is doing great over two years later.
    You can also read about it in a book by Marie Rhodes, R.N. “CCSVI as the cause of MS” available at Amazon and B&N. Marie was the second person treated in the US.

  2. I would like to know if Chronic Cerebrospinal Venous Insufficiency can be treated with prescription medications before a patient will undergo through certain surgical procedures associated in treating this kind of medical condition. Also, I would like to know if this medical condition is a kind of health problem that can endanger the life of an individual. Anyone who can help me with this. Thanks a lot.

  3. This is an interesting ‘article about >CCSVI Current Status <I'll mar gage ofttimes!

  4. What do you mean you don’t think like us? Are you talking about those who commented on the CCSVI post? Details, I want details!
    Linda

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