Living with multiple sclerosis is an emotional roller-coaster! Before the Cytoxan (Cyclophosphamide) treatment at Johns Hopkins in 2008, I had no hope of the life I planned on living at the age of 45. I was honestly ready to meet My Maker, I wasn’t suicidal, just ready to go. I’d tried all that the medication the neurologist had to offer and I was going down, needing in-home health care.
When I was given the ‘go’, my mom and step-dad flew me down. We arrived in Baltimore, Maryland in the middle of the night June 26th. We moved into our very disappointing apartment, $2400/month for a DIRTY, mouse infested rental.
I had my first appointment with the nurses and doctors that day. I was accepted immediately and had the Hickman put in the next day. I checked into the hospital two days later for the 4 day Cytoxan treatment.
Mom thoroughly cleaned the entire 2 bedroom, 2 bath apartment while I was in the hospital, knowing that I would be susceptible to all kinds of sickness with no immune system.
I was released from the hospital on day 5 and headed back to the now clean apartment. I didn’t have a wheel chair so I sat on my rickety walker while my parents pushed me to the room until Fred borrowed one from Johns Hopkins.
Mom and Fred drove me back to the hospital daily to have my blood tested and receive medicine to boost my immune system.
We had wonderful, reassuring visits with other patients in the waiting room. We were all going through similar situations and became instantly close with each other.
We had the delightful surprise of visits from my beloved Aunt Marian and a great friend of my daughter’s Patty Tanner.
God uses people to perform miracles in our lives on a daily bases and I felt a miracle happen. I am thankful for many people in my life who made this possible. Dr. Brodsky and Dr. Kerr gave me the gift through their research and service, my husband, who couldn’t be with me because he was needed at work (to provide the insurance), Mom and Fred for getting me there and paying all the expenses to the tune of thousands of dollars.
Mom says we got a small miracle while we were hoping for a huge one, and it’s been an emotional roller coaster for us all. I know the Cytoxan treatment gave me a second chance. I’m energetic and happy, living a very enjoyable life. At 47, it’s looks different than I planned, yet I found purpose in my circumstance.