MS Extreme Sports

by Yvonne deSousa

Multiple Sclerosis sporting events

Years ago, my 10 year old nephew spent the weekend with me and we went to the video store to rent some movies.

(For you young ones who need clarification, my nephew is 21 now so this was back in the scary days before Netflicks, On Demand and Amazon.  There was no instant movie watching gratification.  If you wanted to watch a movie you actually had to get in your car and drive a few minutes to a store to see if the movie you wanted to watch was even available and then you paid for it and brought it home.  This is how we used to have to do it- horrors I know.)

He was into skateboarding and so the movie we rented was about extreme skateboarding.   We unknowingly turned it in late and I had some explaining to do when my boyfriend and I rented a movie the next weekend and he wanted to know why he was paying a late fee for a movie titled XXX that I supposedly rented with my nephew.

“It was called XXX as in triple X sporting events-skateboarding, snowboarding, dirt biking.”

‘Uh huh.”

For some reason, remembering this story got me thinking about extreme sports for MS’er’s.  I know many of my fellow MS’er’s keep themselves very active.  Montel Williams went snowboarding in Chile this summer. Is there even snow in Chile, especially in the summer?  I was too fatigued to Google this fact to get that question answered.

My aunt tells me her friend has MS and participates in triathlons.  I don’t know that a triathlon is but just saying the word is making me tired.

And then there are a lot of people with MS who walk in the MS Walks to raise money and awareness about this insidious disease.   I could do that. I bet I could walk the whole route; if someone let me borrow their motorized chair maybe.

I am proud of my fellow MS’ers and say good for them!  But it is making me feel left out.  How come there isn’t a sport for me to go the distance in?  There are some things I am great at.

How about an extreme sleeping event?  I would totally ace that one!   One time I slept a total of 23 out of 27 hours!  Can Montel do that?

What about an extreme bladder release event? How many times can you empty your bladder in one night?  My record is 18 in a five hour time period.  That is extreme for sure!

How about a driest mouth event?  My meds cause the worst case of dry mouth and I swear that if I didn’t brush my teeth constantly, I could grow a forest on my tongue.

How about a pin cushion event?  One time, I had three different shots in one day- my regular, a blood test and the flu shot.   How many living pin cushions are there in this world?

I do, I feel left out.  Perhaps I will make my own extreme video.  Of course it might be a little boring for others to watch in the sleeping event.

And I am not sure how much visual detail in the bladder event I want to include, but I will figure this out.  After I go to the bathroom and take my meds.  Then perhaps I will rest for a bit……

About the author: Yvonne deSousa was diagnosed with relapsing/remitting multiple sclerosis in 2009. Yvonne created her blog designed to help those with chronic illness laugh amid tears. Yvonne also enjoys writing about Cape Cod history and has been published on Cape Women Online and in the Provincetown Banner, and Cape Cod Times. Visit Yvonne online at or Yvonne deSousa on Facebook


About our Co-Founder: With a bachelors in Social Work, Linda is 53 years old, happily married with eight children and 17 grandchildren. Diagnosed with MS in 1995 and now having accepted and truly embraced her new reality, Linda has created She is dedicated to proving that joy can be chosen while living with Multiple Sclerosis. Linda specializes in helping others, especially those with MS attain the lifestyle, independence and happiness amid living with MS.


  1. Yvonne~
    Thank you! You really make me chuckle! I’m sure you’re not alone with these thoughts yet changing the irritation into something to laugh about makes it doable!

  2. These extreme sports for people with MS are so unbelievable. This endeavor is so noble that people afflicted with so much pain can still be sporty and active in their own ways. I support this program!


  3. Here is one! All the different ways to fall. Free falling down the stairs. Can you think of more?

  4. I didn’t know that disease existed until now. Thanks for sharing this great information. Keep up with the good work. God bless.

  5. I think it was a great movie. Really it was great sport perform by your nephew. Thanks for sharing your experience!!

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