Multiple Sclerosis is an eventful experience, to say the least. It is all in your mind ~ literally. It is all in the central nervous system. As you know, MS is an auto-immune disease. The immune system, which is supposed to be attacking any disease, instead attacks the protective coating of the nerves.
With enough attacks, the protective coating is gone and eventually the nerves themselves are injured. As the nerves are injured, the signals are unable to get from the brain to the body (in my case, mostly the legs). A serious attack is called an exacerbation and it’s crazy! Starting at the end of 2010, I experienced about one every month for almost two years. So I really was able to identify what it felt like to head into an exacerbation.
When I started to get weary, a fatigued feeling, to the point that it was hard to pick up a pencil to write a note, or lift a spoon to eat a bite, I new I was heading down. It felt like I was standing on the top of a very steep hill, almost a cliff.
Then it would just take a matter of hours, and it was like I had jumped down the hill.
It always made me think of Princess Buttercup in the movie Princess Bride when she tumbles down shouting after Wesley as he screamed, “as you wish!”
Unfortunately, it wasn’t as easy for me to get up as it was for Buttercup. I would be totally knocked out ~ flat in bed for days. The Dr. would give me mega doses of steroids to decrease the inflammation caused by the immune system’s malfunction.
A nurse would come to my house to give the steroid infusion, I’d tell the kids I had my own private nurse. The drugs would pick me back up but never to the point that I was before the attack. I’d have a couple weeks of feeling good before I’d roll back down again.
A very good friend gave me a journal so I could write about my experiences. Writing it all down was very therapeutic. I didn’t realize this benefit until years later.
Now that I’ve completed my training, and I’m a certified life coach, homework is assigned every week and it includes Journal Writing and the benefits are amazing! If you’re interested, you can check out my Life Coach Page here.