The Flip of a Coin

My name is Alejandro ez Bermúd but please call me Alex. I was born in Managua, Nicaragua and have been living with Multiple Sclerosis (MS) for almost 14 years now.

I’m sure you heard it before…..the saying about how life can change in the flip of a coin, right?

Well, THAT’S EXACTLY WHAT HAPPEND TO ME!

I went to bed one night back in October of 1996 and by mid morning the next day, I was having all sort of difficulties with coordination and strength. It all started when I tried to call my secretary over the intercom and I talked in a total slur.

My wife, Alina Alejandra, and I were married a little over a year before “that day”.

We had been making all sorts of plans when life suddenly was turned upside down. I remember feeling extremely tired, more like exhausted. That sure was odd; it was around 10 o’clock in the morning.

I managed to go back home and the last thing I remember doing was falling down, crashing, in our bed.

At around 12:30 my wife got home for lunch and woke me up. She was surprised to see me but I was more surprised when I started to tell her about what had just happen that morning and realized I was talking fine and everything seemed back to normal.

THE FEAR OF NOT KNOWING

We didn’t think too much about it. We ate lunch and I went back to my office around 2:00 pm. By one of those life’s coincidences, my dad came by my office that afternoon. My grandmother had just passed away a few months before and when I told him about the weird incident I had that morning, he suggested we go see the Neurologist that had seen my grandma.

Although everything seemed to be back to normal, the doctor had me do a bunch of movements with my eyes, my legs and my arms, including my hands. He suggested I get a CT scan and a couple of days later he told me I have had a brain infarct or Ischemic attack. The doctor suggested we go somewhere with an MRI facility and he referred us to a colleague neurologist.

My parents, my wife and I decided to travel to Miami, Florida to see the neurologist my doctor back home referred me too and get a brain MRI.

GETTING THE DIAGNOSIS

To make a long story short, the new neurologist saw the MRI results and after examining me told us that there was a chance of me having MS but if nothing happens in the next five years, we could discarded it as one of those “flukes” in life !

We all sat there in front of the doctor not knowing what to say or what to think. I didn’t know anything about MS. Not even what MS meant.

My mom’s look was one of sheer fright. She knew somebody who had MS. It was a long time ago but she remembered that her friend couldn’t walk and needed a wheelchair to get around.

We left the doctor’s office in total shock. I knew it was serious but didn’t know how serious nor how it was going to affect my, my wife’s and my entire family’s lives.

That was almost 14 years ago and although it hasn’t been easy, the changes I have made, in both the physical as well as the mental aspects of living with multiple sclerosis, during the past 7 years, are the foundation of my new living with MS.

WHY DID I CREATE MULTIPLE SCLEROSIS-SYMPTOMS.COM?

Every time I get the chance to meet someone else living with MS, I automatically feel a bond forming. I don’t know about you but for me the fact that this person knows exactly how it feels to have MS every day, morning and night, makes me want to talk to that person right away.

Hearing someone with MS say – “I know exactly how you feel” is sort of special for me. I’ll explain:

Your parent’s are probably the people that loves you the most in the whole world, but regardless of what they say, they will never know, no matter how many times they say they understand, exactly what you are experiencing.

That got me thinking about what I could do to share what I know about MS and perhaps help others. Whether they have it too or just want to know more about it from a patient’s point of view, hence www.ms-multiple-sclerosis-symptoms.com.

”A DOOR CLOSES BUT ANOTHER ONE ALWAYS OPENS”

I love that saying. I really believe it. It is so true. MS forced me to leave a very good job with a promising future ahead: I was General Manager of a Money Transfer business. I was well compensated and with all the usual benefits that come with such a position. Oh well………..That door is definitely shut.

I don’t want to bore you with all the details about the hardships and frighten moments my wife and I had to face. Needless to say, although my wife works, the idea of me no longer being able to work at some point in the future – when? Nobody could say – was a very scary picture on my mind.

I graduated from Berry, College in Rome, Georgia with a B.S. in Computer Science/Business Administration. In 2009 I started to look at work-from-home opportunities on the Internet and after a lot of reading and some interesting research I found Site Build It (SBI) and I discovered a solution to my problem.

FINDING THE SOLUTION TO THE PROBLEM

I cannot say that I like having MS (who would?). I can, however, say that I know very well what it is to live with MS and how to make the best out of living with it. That got me thinking: How can I share what I know and hopefully help others going through the same thing while opening a new door?

Nowadays I feel I am really doing something that is going to help me, my family and others and that’s making a big difference in how I perceive my MS and my life.

Take care and be well,

Alex

8 Comments:

  1. Alejandro, you described very well the shock and subsequent adjustments associated with coming down with MS. I am glad you found a way to create value, both personal and financial, in your life again. It is wonderful that you have your family’s support since that is critically important. I wish you well in whatever you attempt in the future.
    Judy
    Peace Be with You blog

    • Dear Judy:

      Thank you for your comments and kind words. You’re totally right about being blessed by having the support of my family.
      God bless you and be well,

      Kind regards,
      Alex

  2. Judy, thank you very much for your comment.
    Wishing you the best, be well,

    Alex

  3. There’s nothing you can do, but to accept that you have MS. Although you are suffering from Multiple Sclerosis, never let it control your life. It may take away your ability to move, but it will never take away your source of happiness. Believe me like I believe in you, you can still do something that will make you happy. You still have one shot at life, and that is live it to the fullest.

    • Dear Candice,

      You are correct 100% about not leting MS control or rule my life. As a matter of fact, there is a saying I really love to repeat and that is, I have MS but MS does not have me !

      Thanks you for your encouraging and kind words. God bless you and please be well.

      Alex

  4. You are keeping everything of your life OK. It is really impressive for a husband. I am so much proud of a man like you. You are really great. I like your character so so.

  5. Hello Alejandro,
    My name is Roberto Ledezma and I was born in Managua as well. Your story is very similar to the one, me and my wife are dealing with at this moment. Just to clarify, I am not the one suffering from MS. Unfortunatelly, the one suffering from this terrible illness is my lovely wife. We have been married for almost 22 years now, we have 2 kids (boy and a girl) and we have done and accomplished great things together.
    She was diagnosed right after our son was born (18 years ago) and… well, you know the rest.
    We are at this moment at a turning point in our lives since for her; performing as LAWYER is getting more and more dificult in every aspect. We have recently, decided to file for desability insurance benefits, sell my business of 13 years and take our CIRCUS and ACT somewhere else. Nicaragua is our ideal destination for many reasons, but the most important one must be the one that will benefit my lovely wife in many ways, shapes and forms.

    Te deseo todo lo mejor en este mundo y para adelante como buen Nicaraguense.

    Mi madre decia que: LA PEOR LUCHA ES LA QUE NO SE HACE!!
    Todo lo mejor para ti y tu familia.

    • Roberto,
      I’m sure that Alex is going to reply to your comment but I just need to sneak in reply~ I’m sorry that your wife has this crazy disease~ I have to say that you are doing a world of good, standing beside her and helping her through it. Stay strong and I wish you the best!
      ~Linda

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